I received this email from a friend who knew I had Lyme disease.
"Dear members of Lyme Disease Awareness,
This past month, Dr. Mehmet Oz (from Oprah and Friends) interviewed Andy A.
Wilson, the director of the Lyme disease documentary, "Under Our Skin" (www.underourskin.com). Dr. Oz is just beginning to learn about Lyme and he is asking for our help.
During this interview Dr. Oz issued the Lyme community a challenge to prove
we have a voice. He made a point of mentioning that he is interested in the
number of responses he receives...Lets make it a number he cannot ignore!
There are more than 3,800 members in this group alone - imagine if we ALL
took the time to send just one email?!
To listen to the full interview:
http://www.zshare.net/audio/51988431783ad036/
To email Dr. Oz:
link here
Please take 5 minutes to write Dr. Oz and tell him your story, or your loved
one/friends story! Dr. Oz is especially interested in those who have been
cured, however, he's still learning and we need to educate him that even
those of us who have not been cured are helped by long term antibiotics and
that more research is needed so that we can find a lasting cure.
The chance of having our story, told on The Oprah Show is monumental and
this is a challenge we can't afford to ignore!
Thank you!
-The Lyme Disease Awareness Administrators"
Here is what I wrote:
"I understand you are interested in stories from the Lyme community. I can understand your emphasis on those cured. Most who suffer with Lyme are so severely sick that to relate to someone in the midst of the illness only gives them more validity to staying ill. Prior to the diagnoses, I had been diagnosed with early Alzheimer's, Parkinson's, Plausible MS, etc. My family and I were on a wild rollercoaster ride. However, even during the deepest possible downward swings, I would take pride in accomplishment...I felt grateful for the little things, such as, being able to make my kid's lunches, and being able to walk to the bathroom on my own. The diagnoses was inspired through the prayer of my church and my family. Once diagnosed and confirmed, I was put on an intense regimen of Doxycycline 2 x daily for 5 months. It's amazing to me what I can accomplish! I was diagnosed last October (2007) after being in a wheel chair during our family trip to Disneyland. Today, I have graduated in our city's CERT (Community Emergency Response Team), the Legislative V.P. in the PTA at the elementary school, in charge of the school Knowledge Bowl program (http://harvestknowledge09.blogspot.com), have been blogging since my diagnoses (http://issuesoncall.blogspot.com), and etc. Paramount to wellness success is getting outside of yourself and back into the functioning's of the world around you. By doing this, I have had mile markers to reach. By reaching those mile markers I have learned that I can reach further. From each mile marker I reach I receive a more positive sense of self and learn more about my talents and abilities. Most important is having a great support system. My husband is the best on the planet! My children are gold! Without the support system I have, I would not be the person I am today!"
If you have Lyme, please share your story so that the word can get out. Your story will have to be consolidated to 2000 characters (spaces included), so to lessen the frustration, you may want to type it in Word before submitting it.
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Showing posts with label Lyme disease awareness. Show all posts
Showing posts with label Lyme disease awareness. Show all posts
Saturday, December 13, 2008
Friday, July 25, 2008
Friday, July 18, 2008
Lyme-5 Ways to Avoid Getting Bitten
FOXNews.com
Preventing Lyme Disease: 5 Ways to Avoid Getting Bitten
Wednesday, May 28, 2008
By Karlie Pouliot
Source:
FOXNews.Com
Preventing Lyme Disease: 5 Ways to Avoid Getting Bitten
Wednesday, May 28, 2008
By Karlie Pouliot
"Busy planning your first hiking trip of the summer or that weekend camping adventure?
Beware. Danger could be lurking in the form of an eight-legged, bloodsucking parasite known as the tick.
While some ticks are harmless — others are carriers of a potentially debilitating infection.
“Lyme disease is carried by ticks and it’s transmitted by ticks,” said Dr. Joseph Rahimian, an infectious disease specialist at St. Vincent’s Hospital in New York City. “It can cause skin manifestations, joint manifestations and it can even affect your heart and brain.”
According to the Centers for Disease Control and Prevention (CDC), Lyme disease is caused by the bacterium, Borrelia burgdorferi, which normally lives in mice, squirrels and other small animals. It is transmitted among these animals — and to humans — through the bites of certain species of ticks.If you live in the Northeast or out West, you are no stranger to these menacing creatures.
“Connecticut, New Jersey, Pennsylvania and upstate New York … all these areas have the highest rates of Lyme disease,” Rahimian told FOXNews.com.
The culprit in the Northeast is the deer tick. In the Pacific coast, the disease is spread by the western-black legged tick.
“Lyme disease cases usually peak in the summer and spring,” said Rahimian. “It’s when ticks are around.”
It’s also when we spend the most time outdoors.
So how do we protect ourselves?
Here are a five easy ways:
1. Avoid areas where there is a high concentration of ticks. These areas include wooded and bushy areas with high grass.
2. Use insect repellent that contains 20 to 30 percent of the chemical DEET. Spray this on your skin as well as your clothing.
3. Cover up. Wear long a long sleeve shirt, long pants and tuck your pants into your socks or boots. Light-colored clothing is also a good idea because it allows you to spot ticks more easily.
4. Always check yourself for ticks after you’ve spent a lot of time outdoors — especially the lower part of your body.
5. Finally, if you find a tick, remove it as soon as possible. Be sure to remove the entire tick including the head. Use fine-tipped tweezers and grab the tick as close to the mouth, which is the part attached to your skin, as possible. If you are unable to remove the tick fully, call your doctor. Infected ticks usually don't spread Lyme disease until they have been attached for at least 36 hours.
Signs and Symptoms:
— A round, red rash that spreads at the site of the bite
— Flu-like symptoms
— Fatigue
— Headaches
— Sore muscles and joints
— Fever
Treatment:
"If you do get bitten or notice that characteristic bulls-eye lesion on your body, you should see your doctor right away,” said Rahimian. “The reason is because there are medicines that prevent you from getting the long-term consequences of Lyme disease.”
If you have early-stage Lyme disease, oral antibiotics such as doxycycline, amoxicillin, or cefuroxime axetil are most often prescribed. According to the National Institutes of Health (NIH), studies have shown that most patients can be cured within a few weeks of taking these drugs.
But if it goes untreated, Lyme disease can lead to serious health problems.
According to the Mayo Clinic, those problems include:
— Chronic joint inflammation (Lyme arthritis), particularly of the knee
— Neurological symptoms, such as facial palsy and neuropathy
— Cognitive defects, such as impaired memory
— Heart rhythm irregularities
— Memory loss
— Difficulty concentrating
— Changes in mood or sleep habits
“Getting treated early is very important… especially in the first 48 hours,” said Rahimian.
“There's one study that shows if you get bitten and take just one days worth of the medicine it can prevent you from getting Lyme disease in the first place. So again, seeing a doctor early after you get bitten is potentially very helpful,” he concluded."
Source:
FOXNews.Com
Friday, July 11, 2008
Friday, June 27, 2008
Lyme Disease Information Resources
The following is a list of links to provide you with pertinent information regarding Lyme disease, its symptoms, prevention, treatment, and more. As with most complicated diseases, no one treatment is perfect for everyone. Therefore, the more resources available to the public, those struggling with Lyme disease will have more options and opinions with regards to treatment.
Remember...It is NOT all in your head!
HealingWell.Com
CDC
Lyme Disease Foundation, Inc.
LymeNet
State of Maine
National Foundation for Infectious Diseases
Lyme Disease Association
Lyme Disease Resource.Com
The Lyme Guide
Lyme Info.Net
Lyme Disease Research Database
Confronting Lyme.Com
Wikipedia.Org
Chronic Lyme Disease.Com
Truth About Lyme Disease.Com
There are so many resources. Just reach inside these that I have provided. Read the information. Discuss it with your physician. It is never to late to become well again...become well.
Remember...It is NOT all in your head!
HealingWell.Com
CDC
Lyme Disease Foundation, Inc.
LymeNet
State of Maine
National Foundation for Infectious Diseases
Lyme Disease Association
Lyme Disease Resource.Com
The Lyme Guide
Lyme Info.Net
Lyme Disease Research Database
Confronting Lyme.Com
Wikipedia.Org
Chronic Lyme Disease.Com
Truth About Lyme Disease.Com
There are so many resources. Just reach inside these that I have provided. Read the information. Discuss it with your physician. It is never to late to become well again...become well.
Friday, June 20, 2008
Friday, June 13, 2008
Friday, May 23, 2008
Friday, May 16, 2008
Monday, May 12, 2008
Friday, May 2, 2008
Cognitive Therapy and Lyme Disease
Anyone who has been chronically ill for any length of time understands that you, many times, may feel less than adequate to handle your day-to-day activities. How do you take that thinking and change it to the positive? Cognitive therapy.
When I have listened to, watched YouTube videos of, or read about those who have been chronically ill with Lyme or with other illnesses, it seems that many wallow in their situation.
Research has proven the mind-body connection regarding illness and healing. When your mind is constantly on your illness or disease, it tends to cause the symptoms to get worse and often times causes a delay in healing.
When you talk to others, do you constantly discuss your illness?
When you are at home, not feeling well, do you just lay around?
Keep up on world affairs and/or other topics (other than your disease or illness) that you love. Use those as conversation pieces.
When you are not feeling well and are at home, do you set goals for yourself? Set a goal of what accomplishments you'd like to take care of during any particular day. Make these goals reasonable. Don't make a long list. You will be happy and boosted up by accomplishing those little tasks that you set as goals.
Additionally, when you have down time, don't lay and watch TV. Read. Stimulate your brain. Read uplifting literature. Take time to stretch your muscles. Use a beginner Yoga and/or Tai Chi video to make yourself stronger. It will make your mind and emotional center more calm, as well as help your muscles to become stronger and less sore. You will be amazed at the results!
Without cognitive therapy and the practice of what I have been taught, I would not make it through each day in such a positive manner. I love life! There are endless possibilities!
"Cognitive therapy seeks to identify and change "distorted" or "unrealistic" ways of thinking, and therefore to influence emotion and behaviour." wikipediaThrough therapy with someone who is trained in cognitive therapy you soon realize that no matter what happens TO you, you can create your reality based on YOUR reaction to what happens. This therapy also helps you create your reality the positive way, regardless of what has happened in your past.
"One etiological theory of depression is the Aaron Beck cognitive theory of depression. His theory is regarded as the most verified psychological theory of depression. His theory states that depressed people feel the way they do because their thinking is biased towards negative interpretations. According to Beck’s theory of the etiology of depression, depressed people acquire a negative schema of the world in childhood and adolescence. (Children and adolescents who suffer from depression acquire this negative schema earlier.) Depressed people acquire such schemas through a loss of a parent, rejection by peers, criticism from teachers or parents, the depressive attitude of a parent and other negative events. When the person with such schemas encounters a situation that resembles in some way, even remotely, the conditions in which the original schema was learned, the negative schemas of the person are activated.
Beck also included a negative triad in his theory. A negative triad is made up of the negative schemas and cognitive biases of the person. A cognitive bias is a view of the world. Depressed people, according to this theory, have views such as “I never do a good job.” A negative schema helps give rise to the cognitive bias, and the cognitive bias helps fuel the negative schema. This is the negative triad. Also, Beck proposed that depressed people often have the following cognitive biases: arbitrary inference, selective abstraction, overgeneralization, magnification and minimization. These cognitive biases are quick to make negative, generalized, and personal inferences of the self, thus fueling the negative schema."
When I have listened to, watched YouTube videos of, or read about those who have been chronically ill with Lyme or with other illnesses, it seems that many wallow in their situation.
Research has proven the mind-body connection regarding illness and healing. When your mind is constantly on your illness or disease, it tends to cause the symptoms to get worse and often times causes a delay in healing.
When you talk to others, do you constantly discuss your illness?
When you are at home, not feeling well, do you just lay around?
Keep up on world affairs and/or other topics (other than your disease or illness) that you love. Use those as conversation pieces.
When you are not feeling well and are at home, do you set goals for yourself? Set a goal of what accomplishments you'd like to take care of during any particular day. Make these goals reasonable. Don't make a long list. You will be happy and boosted up by accomplishing those little tasks that you set as goals.
Additionally, when you have down time, don't lay and watch TV. Read. Stimulate your brain. Read uplifting literature. Take time to stretch your muscles. Use a beginner Yoga and/or Tai Chi video to make yourself stronger. It will make your mind and emotional center more calm, as well as help your muscles to become stronger and less sore. You will be amazed at the results!
Without cognitive therapy and the practice of what I have been taught, I would not make it through each day in such a positive manner. I love life! There are endless possibilities!
Friday, April 25, 2008
Friday, April 18, 2008
Wednesday, April 16, 2008
Friday, April 11, 2008
Lyme Disease...Open Your Eyes!
I post this as back-dated because I have been ill from Lyme this week...I call it a Lyme week. I saw a specialist on parasitology Friday. He said that I need to go off of the Doxycycline. It should be interesting to see how it goes from here since I have been sick for 15-20 years (estimated) and I have only been treated with Doxycycline for 4 months. This disease is baftling, frustrating, confusing! Life is great and is meant to be lived!
With my research on this subject and my ability to speak out clearly about it, I choose to be a spokesperson on this subject. I have lived, am living the life of Lyme disease. Life can have quality! Life should be quality that is great! It is my goal to help others with this dreadful disease have great lives as well!
Monday, April 7, 2008
"Lyme Disease: A Clear and Present Danger"
Comment from the YouTube site:
"Thank you so much for making this video. 15+ doctors later, i am still sick. When is the CDC going to wake up and change the standard testing to the Western Blot? Who profits from the ELISA? There we will find our answers. This is such a TRAVESTY to MANKIND."
Friday, April 4, 2008
Friday, March 28, 2008
Ignorance of a Plaque. Conclusion.
Concluding from the past two Fridays, the following is information regarding a report written by Dr. Scott Taylor called "Lyme Disease (Borreliosis), A Plague of Ignorance Regarding the Ignorance of a Plague".
The more research I do, the more I come into contact with interesting bits of information that I can relate to my own experiences with Lyme. One such piece of information was this.
In the past, I have written posts that have included lists with Lyme disease symptoms. However, my lists have not been as inclusive as the following from this report.
Lyme Disease Symptoms
During his section regarding the diagnoses of Lyme, Taylor states the frustrating issues with the tests, such as ELISA and Western Blot, which often have false negative results. Clearly, Western Blot has fewer false positives. However, many doctors will stop at the ELISA test when that proves negative, not following up with the Western Blot. Again, an emphasis needs to be placed on the percentage of false negatives and re-testing should always be the clear consideration upon a negative result.
Taylor suggests that treatment be multifaceted.
One source he sites for better treatment than the basic course of antibiotics as offered as the conventional treatment is protocol for sarcoidosis found at www.sarcinfo.com.
Sources for therapy that are listed as "Papers for Physicians" at the www.sarcinfo.com site are the following.
If you are familiar with the conventional treatment plan, these plans listed are much more multifaceted and comprehensive.
One treatment, often used with Doxycycline is Metronidazole (Flagyl).
Additional therapies recommended in Taylor's report are "Hyperthermia", or hot baths, showers, or saunas that raise the body temperature, "Pulse Electro-Magnetic Fields" (pemfs), "Rife Machine", "Beck Electrification", "Lauricidin", "Colloidal Silver", "Cat's Claw/Samento/Saventero", "Artemisinin", "Goldenseal root", "Teasel", "Olive Leaf Extract", "Garlic", European (or Hungarian Mistletoe", "Peroxide", and "Ozone".
This report is amazingly detailed. Taylor has remedy recommendations for controlling inflammation and the immune dysfunction, protection of the nervous system from neurotoxins, detoxifying, etc.
Additionally in his report, Dr. Taylor explains and emphasizes tick protection and prevention.
I conclude with his conclusion, as I have no way of wording my feelings any more concisely or clearly.
Sources:
www.autoimmunityresearch.org
www.sarcinfo.com
The more research I do, the more I come into contact with interesting bits of information that I can relate to my own experiences with Lyme. One such piece of information was this.
"Lingering Lyme: The Chronic Persistent Infection
Some symptoms and signs of Lyme disease may not appear until weeks, months, or years after a tick bite. This stage typically involves intermittent episodes of joint pain or numerous neurological symptoms such as: meningitis, Bell's palsy, dysfunction of cardiac rhythm, and migratory pain to joints, tendons, muscle and bone. Arthritis is most likely to appear as brief bouts of pain and swelling, usually in one or more large joints, especially the knees. In some patients, the first and only sign of Lyme disease is arthritis. In others, nervous system problems are the only evidence of Lyme disease. However, any combination of symptoms can be present.
...
The course of the disease can best be described as persistent, with periods of worsening symptoms, often cyclical every few weeks or monthly. Especially disconcerting are persistent symptoms such as pain, headaches and fatigue. Some patients are more symptomatic than are others, which may reflect gender and genetically-determined differences in response to infection. The disease is progressive, destructive, and debilitating, and in severe untreated cases, it can be fatal.
...
Lyme disease causes metabolic/endocrine dysfunctions that lead to weight loss or commonly chronic weight gain.
Generally, women struggle with chronic Lyme disease more severely than men do. It is not known for sure why."
In the past, I have written posts that have included lists with Lyme disease symptoms. However, my lists have not been as inclusive as the following from this report.
Lyme Disease Symptoms
"As I mentioned before, every organ and organ system can be affected, here’s a list of some of the LD symptoms as they relate to specific areas of the body:
Head – headache, neck pain, facial pain and paralysis, difficulty chewing, pain in teeth, dry mouth, loss of taste/smell, numb tongue/mouth. Peculiar metallic or salty taste is also common in LD. This is likely due to the BLPs present in the system.
Bladder -- frequent or painful urination, repeated urinary tract infections, irritable bladder, interstitial cystitis.
Lung -- respiratory infection, cough, asthma, pneumonia, pleurisy, chest pains
Ear -- pain, hearing loss, ringing (tinnitus), sensitivity to noise, dizziness & equilibrium disorders.
Eyes -- pain due to inflammation (scleritis, uveitis, optic neuritis), dry eyes, sensitivity to light, drooping of eyelid (ptosis), conjunctivitis, blurry or double vision, swelling around eyes / bags below the eyes.
Throat -- sore throat, swollen glands, cough, hoarseness, difficulty swallowing
Neurological -- headaches, facial paralysis, seizures, meningitis, stiff neck, burning, tingling, or prickling sensations (parathesia), loss of reflexes, loss of coordination, equilibrium problems/dizziness (these symptoms mimic an MS, ALS, or Parkinson’s like syndrome)
Stomach -- pain, diarrhea, nausea, vomiting, abdominal cramps, anorexia
Heart -- weakness, dizziness, irregular heart-beat, myocarditis, pericarditis, palpitations, heart block, enlarged heart, fainting, shortness of breath, chest pain, mitral valve prolapse.
Muscle & skeletal system -- arthralgias (joint pain), fibromyalgia (muscle inflammation and pain)
Other Organs -- liver infection / hepatitis, elevated liver enzymes, enlarged spleen, swollen testicles, and irregular or ceased menses.
Neuropsychiatric -- mood swings, irritability, anxiety, rage (Lyme rage), poor concentration, cognitive loss, memory loss, loss of appetite, mental deterioration, depression, disorientation, insomnia
Pregnancy -- miscarriage, premature birth, birth defects, stillbirth
Skin – EM, single or multiple rash, hives, ACA
Another interesting symptom often noticed is an increased susceptibility to electrostatic shock. This is likely due to the BLPs causing a change in the electro-potential in our cells/nervous system. Some of these toxins are likely sodium channel agonists and can change the electrical potential of our body. Thus, the likelihood of electro-static shock."
During his section regarding the diagnoses of Lyme, Taylor states the frustrating issues with the tests, such as ELISA and Western Blot, which often have false negative results. Clearly, Western Blot has fewer false positives. However, many doctors will stop at the ELISA test when that proves negative, not following up with the Western Blot. Again, an emphasis needs to be placed on the percentage of false negatives and re-testing should always be the clear consideration upon a negative result.
Taylor suggests that treatment be multifaceted.
"The best approach to therapy is a multifaceted and comprehensive treatment regimen that includes conventional antibiotics, numerous complimentary and alternative therapies, and a nutritional regimen specifically designed to reduce inflammation, aid the liver in detoxifying the BLPs, decrease the risk of yeast infections, repair damage caused by the disease and strengthen the immune system."
One source he sites for better treatment than the basic course of antibiotics as offered as the conventional treatment is protocol for sarcoidosis found at www.sarcinfo.com.
Sources for therapy that are listed as "Papers for Physicians" at the www.sarcinfo.com site are the following.
"Antibacterial Therapy induces Remission
Implications for Autoimmune Disease
(Here is Fulltext preprint)
Antibacterial mechanisms for ARBs
Antibiotics in Sarcoidosis- The 1st Year
Rationale for abx in Sarcoidosis
1,25-D and Angiotensin II
"New Treatments Emerge.."
Jarisch-Herxheimer in Sarcoidosis
Vit.D and Calcium in Sarcoidosis
Protocol Phase 1-First 3 months"
If you are familiar with the conventional treatment plan, these plans listed are much more multifaceted and comprehensive.
One treatment, often used with Doxycycline is Metronidazole (Flagyl).
"Metronidazole (Flagyl) is a very effective antimicrobial for treating chronic Lyme disease. It distributes well throughout the body and is able to penetrate tissue and cells. This ability allows metronidazole to reach the cryptic borrelia throughout the body and kill it. Metronidazole is also effective at attacking the cyst form of borrelia. This may be the single most effective antimicrobial pharmaceutical for treating Lyme disease. The disadvantage of metronidazole is it’s toxicity to the liver and neurological system. It can raise liver enzymes and cause peripheral neuropathies similar to LD itself. These side-effects must be prudently monitored."
...
"Several antibiotics work together synergistically to improve the therapeutic effect against borreliosis. Examples of antibiotics that work well together when combined include: amoxicillin, metronidazole, clarithromycin or zithromycin, and co-trimoxazole. Co-trimoxazole works well in late stage Lyme disease, especially when given in combination with other antibiotics like amoxcilliln and/or a macrolide such as azithromycin. Earlier, one exception to antibiotic combinations was the use of metronidazole and the tetracyclines together. It is now believed that these two antibiotics do work well when combined. For example, there are reports of good result when doxycycline is used with flagyl."
Additional therapies recommended in Taylor's report are "Hyperthermia", or hot baths, showers, or saunas that raise the body temperature, "Pulse Electro-Magnetic Fields" (pemfs), "Rife Machine", "Beck Electrification", "Lauricidin", "Colloidal Silver", "Cat's Claw/Samento/Saventero", "Artemisinin", "Goldenseal root", "Teasel", "Olive Leaf Extract", "Garlic", European (or Hungarian Mistletoe", "Peroxide", and "Ozone".
This report is amazingly detailed. Taylor has remedy recommendations for controlling inflammation and the immune dysfunction, protection of the nervous system from neurotoxins, detoxifying, etc.
Additionally in his report, Dr. Taylor explains and emphasizes tick protection and prevention.
I conclude with his conclusion, as I have no way of wording my feelings any more concisely or clearly.
"As the word spreads about the complex nature of this disease, the hope is that more doctors will begin to learn about Lyme, and will take the actions necessary to fight this disease. It is critical that the public and the medical community are made aware of the true prevalence and dangers of borreliosis. Until this gap of ignorance is filled, many unfortunate individuals will suffer needlessly with Lyme disease."
Sources:
www.autoimmunityresearch.org
www.sarcinfo.com
Friday, March 21, 2008
Ignorance of a Plague. Continued.
Continuing from last Friday, the following is information regarding a report written by Dr. Scott Taylor called "Lyme Disease (Borreliosis), A Plague of Ignorance Regarding the Ignorance of a Plague".
In his report, Dr. Scott Taylor explains some of the quandaries regarding the reporting procedures for the CDC regarding Lyme disease. Additionally, he explains the problems with finding a "Lyme Literate Doctor" or an LLMD. Adding to this, one of the main correlations with finding the correct doctor will be asking whether they have a background in Parasitology or parasites. If they have not dealt in that area, they are not going to help you get rid of Lyme disease or its co-infections.
Lyme disease expresses itself much the same as Sarcoidosis. That is that it presents itself as inflammatory disorders.
www.nhlbi.nih.gov
Because of the similarities between the two disease presentations, Dr. Trevor G. Marshall, Ph.D, and Frances E. Marshall, Grad. Dipl. Pharm, have a theory that there may be the possibility that both could be treated with the same medications.
I have yet to find this being used as a therapy in the forums, blog journals and other sites I've investigated. It would be interesting to find feedback regarding this method of therapy. I will do more research for another post on this therapy.
Another interesting point made in his report...
The above terms may seem extremely complicated. However, later he goes through a question and answer sequence that is very interesting. One of the question and answer items is particularly interesting.
There are so many fascinating aspects to this incredibly detailed report.
Dr. Taylor states that the bacterial lipoproteins of borrelia "have the ability to turn our own immune system against the extracellular proteins of our body".
What does that mean? It means that our immune system is fighting against the very "mortar" that holds our cells together. Borrelia "have the ability to grow slowly and avoid attack by the host's immune system", as well as suppress the host's immune system.
For many, Lyme disease is characterized by the "bulls-eye" rash, along with flu-like symptoms. However, when there has been no rash detected (only detected in 50% of Lyme cases), Lyme can remain dormant for months to years before presenting itself with "mystery illness"-type symptoms.
Because there is so much to this report, I am continuing this information in next Friday's post.
Note: I've been on Doxycycline for 5 months. I was having headaches whenever I wore my contacts (my glasses weren't so bad because the prescription was outdated). I went to my eye doctor and my vision has improved considerably in both eyes. If you are experiencing headaches while being treated, please visit your eye doctor to see if your vision may be a contributor.
Sources:
www.autoimmunityresearch.org
www.nhlbi.nih.gov
In his report, Dr. Scott Taylor explains some of the quandaries regarding the reporting procedures for the CDC regarding Lyme disease. Additionally, he explains the problems with finding a "Lyme Literate Doctor" or an LLMD. Adding to this, one of the main correlations with finding the correct doctor will be asking whether they have a background in Parasitology or parasites. If they have not dealt in that area, they are not going to help you get rid of Lyme disease or its co-infections.
Lyme disease expresses itself much the same as Sarcoidosis. That is that it presents itself as inflammatory disorders.
www.nhlbi.nih.gov
"What Is Sarcoidosis?
Sarcoidosis (sar"koi-do'sis) involves inflammation that produces tiny lumps of cells in various organs in your body. The lumps are called granulomas (gran"u-lo'mahs) because they look like grains of sugar or sand. They are very small and can be seen only with a microscope.
These tiny granulomas can grow and clump together, making many large and small groups of lumps. If many granulomas form in an organ, they can affect how the organ works. This can cause symptoms of sarcoidosis."
Because of the similarities between the two disease presentations, Dr. Trevor G. Marshall, Ph.D, and Frances E. Marshall, Grad. Dipl. Pharm, have a theory that there may be the possibility that both could be treated with the same medications.
"In summary, Dr. Marshall’s discovery reveals that during the pathogenesis of borreliosis the BLPs of borrelia trigger inflammation via TLR signaling pathways or by other intracellular activation of NF-kappa B, which stimulates the gene expression for inflammatory cytokines. When the inflammatory cascade goes chronic, it eventually goes into the self-perpetuating cycle described by Marshall. This cycle will continue to produce disease until it is stopped by intervention.
In my opinion, Dr Marshall’s discovery that A-II perpetuates a TH1 inflammatory cascade is nothing short of major medical breakthrough.
Dr. Marshall’s work has not only given us the model for the pathogenesis, he has also given us the therapeutic approach that breaks the perpetual cycle that maintains the inflammatory cascade.
Angiotensin II type 1 receptor blockade. The angiotensin receptor blocker (ARB) called Benicar (olmesartan medoxomil) has specific ARB properties that block this self-perpetuating inflammatory cascade.
Benicar therapy is a medical miracle for those suffering with chronic borreliosis."
I have yet to find this being used as a therapy in the forums, blog journals and other sites I've investigated. It would be interesting to find feedback regarding this method of therapy. I will do more research for another post on this therapy.
Another interesting point made in his report...
"Killing of Borrelia burgdorferi by macrophages is dependent on oxygen radicals and nitric oxide and can be enhanced by antibodies to outer surface proteins of the spirochete."
"Borrelia lack the microbial toxins called lipopolysaccharides (LPS) however, they have over 150 genes that encode for the BLPs that are the key to their pathogenicity. This is over 50 times greater than other pathogenic bacteria. That is, other bacteria usually only have 3 genes for lipoproteins, while borrelia have 150!
With this many BLPs [Bacterial Lipoproteins] triggering an imbalance of the immune system and other innate responses in the body, it’s not hard to see how a cascade of chronic problems can arise from this."
The above terms may seem extremely complicated. However, later he goes through a question and answer sequence that is very interesting. One of the question and answer items is particularly interesting.
Q: It seems that many people are not even symptomatic until years after the original tick exposure.
A: This is true with borreliosis...(this happened in my case). It's also true with syphilis.
This may be due to borrelia's ability to code for so many different BLPs. They have the genetic code for over 150 different BLPs.Depending on which ones and how strong the expression of these BLPs genes are may determine how virulent the borrelia is at different times.
We know that borrelia change the expression of these genes when exposed to different environmental factors such as temperature.
They express different BLPs in ticks since they are in ambient temperature, but once inside a mammal, they begin to change the BLPs that they express.
They also have an effective ability to accept plasmids and pick up other pathogenic genes in this way.
Work has shown that removing certain BLPs from virulent strains makes the borrelia avirulent.
The evidence is very suggestive that BLPs determines the pathogenesis of borrelia."
There are so many fascinating aspects to this incredibly detailed report.
"Gulf-War-Syndrome (GWS) has very similar symptoms to chronic borreliosis."
Dr. Taylor states that the bacterial lipoproteins of borrelia "have the ability to turn our own immune system against the extracellular proteins of our body".
What does that mean? It means that our immune system is fighting against the very "mortar" that holds our cells together. Borrelia "have the ability to grow slowly and avoid attack by the host's immune system", as well as suppress the host's immune system.
For many, Lyme disease is characterized by the "bulls-eye" rash, along with flu-like symptoms. However, when there has been no rash detected (only detected in 50% of Lyme cases), Lyme can remain dormant for months to years before presenting itself with "mystery illness"-type symptoms.
"Lyme disease is an extremely challenging infectious/toxic disease for both doctor and patient. It can exhibit many different symptoms. The clinical picture of LD can be similar to fibromyalgia, including: chronic fatigue, joint pain (arthralgias), muscle, fibrous tissue and tendon pain. Lyme disease can also manifest primarily as a neurological disorder, including fatigue and many neurological symptoms. It is important to remember that there are hundreds of symptoms that are caused by LD and it can mimic many diseases; for this reason, LD is often called, "the great imitator."
Because there is so much to this report, I am continuing this information in next Friday's post.
Note: I've been on Doxycycline for 5 months. I was having headaches whenever I wore my contacts (my glasses weren't so bad because the prescription was outdated). I went to my eye doctor and my vision has improved considerably in both eyes. If you are experiencing headaches while being treated, please visit your eye doctor to see if your vision may be a contributor.
Sources:
www.autoimmunityresearch.org
www.nhlbi.nih.gov
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