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Showing posts with label Chronic Fatigue Syndrome. Show all posts
Showing posts with label Chronic Fatigue Syndrome. Show all posts

Tuesday, April 17, 2012

M.S., Parkinson's, or Simply Lyme Disease?


Have you been experiencing symptoms of illness, knowing that something is wrong but the doctors cannot seem to find the answer and have begun looking at you as a psycho case?

The symptoms constantly change and migrate. They may begin as nagging nausea or swollen lymph nodes for long periods of time, but then you find that you're used to the doctors saying they can't find anything wrong and you get settled into your life again.

Of course, once your able to get along with the nausea and swollen lymph nodes (or whatever symptoms you begin with), along come migraines, unbelievable fatigue, stiff joints, loss of memory, speech impairment, tremor, and seizures. This becomes the process of your life...if you can call it living.

This is exactly what I've experienced over the past (at least) 8 years, although they say I most likely have had Lyme for up to 20 years. During my series of ill years I experienced five bouts of mono, was misdiagnosed with Bipolar Disorder, told I had Lymphoma, misdiagnosed with Fibromyalgia, Chronic Fatigue, experienced depression, anxiety, misdiagnosed with plausible Multiple Sclerosis, and more.

I wouldn't take PLAUSIBLE as the diagnosis.

What was the final diagnosis?

Through a string of events, including physical, mental and spiritual, I was able to visit a doctor who ran some tests (ELISA and the Western Blot) that showed positive for Lyme Disease.

Why didn't I get tested for Lyme Disease earlier in this series of illnesses? Well, on a follow-up with one of my other physicians, I found that he actually tested me with the ELISA test and it came back negative, which is very common as testing for Lyme is not completely accurate.

Click Here For Statistics By The CDC
note:  The CDC acknowledges that their statistics are not necessarily accurate.  In fact, the numbers from independent sources tell us that Lyme disease numbers are higher than AIDS.

Based on where I live, the doctors were not likely to test me. However, when I look at those statistics and look at my resulting diagnosis, I take other statistics into perspective, which make me exclaim about why there is not an alert for doctors to perform the simple blood test for Lyme Disease.



Take, for example, the fact that Lyme Disease mimics symptoms of Multiple Sclerosis.

MS World Map Link

"Multiple sclerosis (ms) is the most common, disabling, neurological condition, to affect young adults in the world today."

If you have a patient who you suspect has MS and have prescribed a lumbar puncture that does not come back as positive for anything abnormal, even with brain lesions (which can occur with Lyme Disease), wouldn't you test the patient for Lyme Disease before stating that they must have PLAUSIBLE MS and prescribing injections that may cost them thousands of dollars per month (not to mention lasting side-effects)?

What about Alzheimer's? Tremor and memory problems along with similar symptoms that may cause a doctor to diagnose someone with Alzheimer's can occur with Chronic Lyme Disease (being infected with Lyme Disease for a length of time).

Alzheimer's Site Link

"Every 72 seconds someone in America develops Alzheimer’s"

Parkinson's Disease is the same as the above diseases. This is a disease that is very hard to diagnose and there is actually not a very firm procedure of diagnoses. Wouldn't doctors be wise to perform a simple blood test to verify that the symptoms are not Lyme Disease?

Parkinson's Disease Link

"How is Parkinson disease diagnosed?
The process of making a Parkinson disease diagnosis can be difficult. There is no X-ray or blood test that can confirm Parkinson disease. A physician arrives at the diagnosis only after a thorough examination. Blood tests and brain scans known as magnetic resonance imaging (MRI) may be performed to rule out other conditions that have similar symptoms. People suspected of having Parkinson disease should consider seeking the care of a neurologist who specializes in Parkinson disease."

Fibromyalgia is another mysterious diagnosis, and a growing number of people are being diagnosed and treated with medication on a daily basis.

Fibromylagia Statistics Link

"Prevalence Rate (Fibromyalgia): approx 1 in 73 or 1.36% or 3.7 million people in USA"

Chronic Fatigue Syndrome is another mysterious illness, yet I found a quote regarding Lyme Disease under "Chronic Fatigue Syndrome" on the following link.

Chronic Fatigue Syndrome Link

"Lyme disease and related tick-borne infections. Lyme disease does not always present acutely with a rash, and less than half of sufferers recall a tick bite (the nymphal deer tick is the size of a poppy seed, and secretes an anesthetic to prevent the host from feeling its bite). Furthermore, the characteristic joint pain is not always present. For these reasons Lyme can be difficult to diagnose, particularly in its later stages, at which point symptoms are virtually identical to those of CFS.[118] The accuracy of blood tests for Lyme remains highly controversial, especially since they depend on an effective immune system response, which many researchers believe is compromised by the disease. As a result, some clinicians believe Lyme is under-diagnosed."

If you know anyone with symptoms as I have listed above, please have them tested for Lyme Disease. Finding you have Lyme disease can relieve a lot of stress from yourself (a loved one) and your family. The treatments may take time to work, however, just think of the consequences of continuing down the road of a diagnoses of Parkinson's or Alzheimer's instead of a simple diagnoses with an actual treatment and hope for the future.

Please feel free to view my Lyme video diary and please subscribe... located here



Sources:
www.cdc.gov
www.themcfox.com
www.alz.org
www.parkinson.org
www.wrongdiagnosis.com
en.wikipedia.org
www.hopkins-arthritis.org

Friday, April 6, 2012

Hyperbaric Chamber Controversy

Here is a PDF regarding the subject of the controversy of hyperbarics... click here


Here is a rather entertaining and informative video regarding the controversy...




Here is an old article regarding the controversy of using hyperbaric chambers in sports...



PROBLEMS ASSOCIATED WITH USE OF
THE HYPERBARIC CHAMBER IN SPORTS:
August 23,1996
Update; Nov. 15,1996The following report was sent to all 26 General Managers in the N.H.L. in January 1995

This past season the Vancouver Canucks were using a hyperbaric (oxygen tank) chamber as part of their training program. At the beginning of the season this chamber was used primarily for speeding up recovery time of injured players. Very soon after this the Canucks began to use it on uninjured players. This is when the problems began.

The Canucks management and training staff had been in touch with myself in mid August of 1993 about trying out our ionization system for a period of two weeks (this try out was canceled two days before we were to start). In our meetings before this, the Canucks management had asked me if our system was similar to their hyperbaric system. I told them it was but I was not about to tell them their system could have major drawbacks. (It would have looked like we were trying to put down their hyperbaric system over ours.) In failing to warn the team at the time I must take partial responsibility over the misuse of the hyperbaric system. Thinking the Canucks had a system similar to the one we were proposing there was no need for them to try our system. They began putting players in the chamber who had no injuries, hopefully to improve endurance, reaction time and balance. Initially this seemed to be the case as the Canucks won 7 of 8 games since the beginning of the season. At this time I could not say anything about the problems until they began to surface.

How does the hyperbaric system work ? The chamber is sealed from the outside atmosphere and pressure is increased on the inside of the chamber. The occupant inside the chamber puts on a breathing device that supplies him with 100% pure oxygen. If the player has an injury, the oxygen together with the increase in pressure pushes the oxygen deeper into the injured area. Recovery time can be cut in half for the injured player. I do not dispute these claims.

Why would there be problems using the hyperbaric system? The system is totally cut off from the outside atmosphere. A natural ion count of 5000 ions per cubic centimeter can be measured in nature. This count can fluctuate but no matter where we go, there are ions. In the hyperbaric tank the ion count would be zero. There is no natural or artificial way to produce ionization in the chamber since the corona discharge from an ionizer would cause the oxygen to ignite. Every human being must have ions to survive. It is this reason why the hyperbaric system is so dangerous.

The Russian ion scientist Tchijewsky tried raising mice, rats, guinea pigs, and rabbits in totally de ionized air. Within two weeks almost all of them had died. Despite the fact the autopsies proved they had died for a variety of reasons - fatty liver, kidney failure, heart degeneration, and , among other ills anemia - Tchijewsky concluded that the real cause of death was the animals' inability to utilize oxygen properly.' An organism receiving the cleanest type of air for breathing is condemned to serious illness if the air does not contain at least a small quantity of air ions."

Tchijewsky's colleague D.A. Lapitsky tried raising small animals in air depleted of oxygen. As they were about to die of suffocation he added neg-ions and found that "animals already near death from asphyxiation began to feel better, sat up sniffed the air, and began to run around the chamber. Their respiration frequency increased. Switching off the ionizer again brought them to the verge of asphyxiation." Lapitsky decided the traditional belief that oxygen alone was the sole prerequisite for the creation and sustenance of life had "demonstrated to be false." Or as Tchijewsky had said, "Death of animals in [de ionized] air must be attributed to the absence of aero ions of oxygen essential to the life activity of an organism." More simply put, without ions we couldn't absorb oxygen in the quantities needed to live. And the fewer ions there are, the lower the efficiency of our minds and bodies.

Tchijewsky also discovered increased performance in athletes using negative ion generators in the late 1940's.

In late November side effects from lack of ionization in the players who were using the hyperbaric chamber for injuries became apparent. Two of these players were Gino Odjick and Pavel Bure. Both had come down with flu symptoms and repiratory problems. The Canucks doctors were unable to find the cause of the respiratory problems. I faxed Pat Quinn on Dec. 16, 1993 with an explanation to these problems and background information on problems with the Hyperbaric chamber. He chose to continue using the chamber. In January I talked with Bruce Newton of the Players Association. I explained the problems with the hyperbaric system but he was unable to help me. "The team and the teams doctors were responsible for any training system and the Players Association had no say over those systems."

The fans of Vancouver began to call the Canucks "TEAM SCHIZOPHRENIC". The Canucks were playing poor at home and great on the road. I contacted Pat Quinn by fax again previous to the playoffs to warn him again. He chose to ignore my advice again. I talked to one of the Canuck players just as the playoffs were starting. He confirmed most of the team was using the hyperbaric tank to increase their play.

Word that this news leaked to me must have gone back to management. At this point management gave the doctors and players permission to speak to the media about how the system worked. (The plan was to bury any controversy before it was started).
Why did the Canucks do so well in the playoffs? First, the playoffs took them away from the hyperbaric chamber for extended periods. Second, the brain under environmental stress from increased positive ions or lack of ions produces hormones and chemicals to deal with this stress. The two main hormones released are melotonin and serotonin. Serotonin is increased and fed into the blood stream. The increased serotonin triggers the release of adrenaline which allows the body to work through the stress. Adrenaline is not quickly renewed as are other chemicals in your body. If a body produces to much serotonin for long duration's, the adrenaline gets used up and the chemical system in the body is unbalanced. This is what was happening with these players. A list of side effects from increasing the serotonin levels in your body for a long period of time are as follows:

Anxiety, nervousness, tremors, sweating, dizziness, lightheadedness, dry mouth, upset or irritated stomach, appetite loss, nausea, vomiting, diarrhea, stomach gas, rash and itching.

Less common side effects include changes in sex drive, impotence, abnormal dreams, difficulty concentrating, acne, hair loss, dry skin, chest pains, allergy, runny nose, bronchitis, abnormal heart rhythms, bleeding, blood pressure changes, headaches, fainting when rising suddenly from a sitting position, bone pain, bursitis, twitching, breast pain, fibrocystic disease of the breast, cystitis, urinary pain, double vision, eye or ear pain, conjunctivitis, anemia, swelling, low blood sugar, and low thyroid activity.
In addition, many other side effects affecting virtually every body system have been reported. They are too numerous to mention.

All side effects mentioned are also experienced from the pill Fluoxetine Hydrochloride (PROZAC). Prozac is an antidepressant drug and works on increasing serotonin levels in the body. It is the natural cortisone levels in the body that are triggered by the serotonin. This added adrenaline gives the personality a boost. Long term studies on Prozac and other antidepressants that work on increasing serotonin are finding most patients on these drugs are worse off after treatment than before treatment. The Food and Drug Administration (F.D.A.) has never in their history had as many problems with a drug as they have had with these forms of antidepressants.

Side effects from positive ions winds (such as the Chinook wind in Calgary and the Santa Ana winds in southern California) compiled by a Swiss meteorological report in 1974 are as follows:

Physical side effects: Body pains, sick headaches, dizziness, twitching of the eyes, nausea, fatigue, faintness, disorders in saline (salt) budget with fluctuations in electrolytical metabolism (calcium and magnesium; critical for alcoholics), water accumulation, respiratory difficulties, allergies, asthma, heart and circulatory disorders (heart attacks approx. 50% higher) low blood pressure, slowing down in reaction time, more sensitivity to pain, inflammations, bleeding embolisms of the lungs, and thrombosis.

Psychological side effects: Emotional unbalance, irritation, vital disinclination, compulsion to meditate, exhaustion, apathy, disinclination or listlessness toward work (poor school achievement), insecurity, anxiety, depression (especially after age forty to fifty); rate of attempted suicide about 20% higher, larger number of admittance's to clinics in drug cases.

In over 90 years since ions were discovered, no side effects have ever been found from negative ions.
SOURCE: 



Here is information (only a piece) from Cancer.org about the use of hyperbaric chambers for therapy.  This is positive information that tells me that they are not dangerous and that more illnesses should be treated through the use of this therapy, and that it should be covered by insurance.

What is the evidence?
There is scientific evidence showing HBOT works to treat a number of conditions. The Committee on Hyperbaric Oxygen Therapy of the Undersea and Hyperbaric Medicine recommends it for treatment of:
  • Decompression sickness
  • Arterial gas embolism (bubbles of air in the blood vessels)
  • Carbon monoxide poisoning (with or without cyanide poisoning)
  • Delayed radiation injury of the soft tissue or bones, including osteoradionecrosis
  • Gas gangrene (a serious infection)
  • Skin grafts and flaps that are not healing well with standard treatment
  • Soft tissue infections in which tissues are dying (necrotic)
  • Anemia due to severe blood loss (when transfusions are not an option)
  • Crushing injuries in which there is not enough oxygen to the tissues
  • Certain wounds that are not healing with standard treatment
  • Thermal (heat) burns
  • Abscess in the brain or head
  • Osteomyelitis (chronic bone inflammation) that does not respond to standard treatment
  • Blockage of the retinal artery (blood vessel in the back of the eyeball)
These are considered to be proven uses of HBOT. For some of these conditions, HBOT is the preferred treatment. For some others, HBOT is one of many treatment options to consider. 
There is conflicting evidence about whether HBOT is helpful in treating fast-spreading infections of the skin and underlying tissues. 
A Swedish study of 94 people with diabetic foot ulcers were divided into 2 groups: one group used HBOT for 85 minutes a day, 5 days a week, for 8 weeks (40 treatment sessions) for treatment, and the other had placebo sessions. Of the group that was supposed to get HBOT, 52% of them had ulcers that were healed at 1 year, while 29% in the placebo group were healed. Of those in the treatment group who actually got more than 35 HBOT sessions, the healing rate was higher, at 61% in the treatment group. This may reduce the risk of foot amputation in some diabetic patients, but more study is needed to be sure that it works. It would also be useful to find out which patients are most likely to be helped by this procedure. 
Early evidence had suggested HBOT might help people with lymphedema (swelling in arms or legs after surgery, which can happen after modified radical mastectomy or other treatments in which lymph nodes are removed or irradiated). A controlled clinical trial published in 2010 looked at 58 women after breast cancer surgery and radiation to the armpit area. There was no difference in arm size between women who had HBOT and those who had standard care, either right away or 12 months after treatment. 
The lack of randomized clinical studies makes it hard to judge the value of HBOT for many of its claims. Available scientific evidence does not support claims that HBOT stops the growth of cancer cells, destroys germs, improves allergy symptoms, or helps patients who have chronic fatigue syndrome, arthritis, multiple sclerosis, autism, stroke, cerebral palsy, senility, cirrhosis, or gastrointestinal ulcers. 
Carefully controlled scientific studies are still going on to find out whether HBOT may be helpful for cluster headaches, migraines, heart attacks, and other conditions. 
Are there any possible problems or complications? 
HBOT is a relatively safe method for selected patients getting approved medical treatments. Complications are lessened if pressures within the hyperbaric chamber stay below three times the normal atmospheric pressure and sessions last no longer than 2 hours. There are some people who should not get HBOT, however. 
Milder problems associated with HBOT include claustrophobia, fatigue, and headache. More serious complications include myopia (short-sightedness) that can last for weeks or months, sinus damage, ruptured middle ear, and lung damage. A complication called oxygen toxicity can result in seizures, fluid in the lungs, and even respiratory (lung) failure. Patients at high risk of oxygen toxicity may be given "air breaks" during which they breathe ordinary air rather than pure oxygen for short periods during treatment. 
People with severe congestive heart failure may have their symptoms worsened by HBOT. Patients with certain types of lung disease may be at higher risk of collapsed lung during HBOT. Pregnant women should be treated with HBOT only in serious situations where there are no other options. People getting certain chemotherapy drugs (such as bleomycin, doxorubicin, or cisplatin) should not get HBOT. Anyone getting disulfiram (Antabuse) or using sulfamylon cream should not get HBOT, nor should anyone with a collapsed lung.
A person with a pacemaker, high fever, or even a cold can be harmed by HBOT. Someone with claustrophobia would likely have trouble being in the HBOT chamber. 
Hyperbaric oxygen chambers can be a fire hazard: fires or explosions in hyperbaric chambers have caused about 80 deaths worldwide. Medical hyperbaric chambers today are generally well-built and have good safety records, but certain cautions must always be observed.
Relying on this treatment alone and delaying or avoiding conventional medical care for cancer may have serious health consequences.
SOURCE: CANCER.ORG

Tuesday, June 3, 2008

Chronic Fatigue and Lyme Disease

Interestingly, in my research regarding Lyme disease, I have made a discovery. This discovery may not be much to someone who is not fighting the battle of the disease. This discovery may not mean much to someone who is not fighting the battle to gain awareness for testing. However, with both of those battles in my lap, I feel the following linked article to be a great discovery.

www.chronicfatiguesupport.com

As you read the article, you begin to realize that someone is acknowledging factors that others are not willing to acknowledge.

First, this comes from Chronic Fatigue Support.com. They are acknowledging that Chronic Fatigue may actually be Lyme disease.

Second is a statement that I have gathered from many locations and sources into one and this link seems to sum it up rather profoundly.

"The incidence of asymptomatic infection has not been adequately delineated. There appear to be substantial numbers of patients who remain asymptomatic, but reactivate their disease a number of months or years later, following trauma, pregnancy, a medical illness for which an antibiotic is prescribed, or other stresses, including psychological stresses. The Lyme OspA vaccine has appeared to reactivate Lyme disease in a number of individuals who knew, but some who did not know, they had prior Lyme disease. The mechanisms responsible for the reactivation of the disease have not been defined, but may include both molecular mimicry and underlying infection."


Third, that many in the medical field don't recognize that there is Chronic Lyme disease or Late-Lyme disease. In this article, they are refuting those claims.

"That chronic Lyme Disease actually exists, and is likely the most common form of the disease, is supported by epidemiologic studies demonstrating that 30-50-% of treated and untreated patients go on to develop a multisymptom disorder typical of, and indistinguishable from, fibromyalgia and chronic fatigue (1, 28). As with other multisymptom disorders, chronic Lyme disease is a clinical syndrome consisting of fatigue, arthralgias and myalgias,and other nervous system dysfunction(7).

Furthermore, the results of treatment studies appear to support the hypothesis that persistent infection is responsible for the chronic symptoms. It is likely that Lyme disease will serve as a useful model for other chronic multisymptom disorders. Whether the pathogenesis of "late" Lyme Disease differs from that of the chronic form of the disease remains to be established."


This last point is one that arguably could save the U.S. economy millions of dollars in healthcare costs, as well as saving lives and relieving stress of the individuals and families involved.

Sources:
Chronic Fatigue Support.com

Friday, February 8, 2008

Chronic Fatigue and Lyme Disease

Interestingly, in my research regarding Lyme disease, I have made a discovery. This discovery may not be much to someone who is not fighting the battle of the disease. This discovery may not mean much to someone who is not fighting the battle to gain awareness for testing. However, with both of those battles in my lap, I feel the following linked article to be a great discovery.

www.chronicfatiguesupport.com

As you read the article, you begin to realize that someone is acknowledging factors that others are not willing to acknowledge.

First, this comes from Chronic Fatigue Support.com. They are acknowledging that Chronic Fatigue may actually be Lyme disease.

Second is a statement that I have not seen in print, but gathered from many locations and sources into one and this link seems to sum it up rather profoundly.

"The incidence of asymptomatic infection has not been adequately delineated. There appear to be substantial numbers of patients who remain asymptomatic, but reactivate their disease a number of months or years later, following trauma, pregnancy, a medical illness for which an antibiotic is prescribed, or other stresses, including psychological stresses. The Lyme OspA vaccine has appeared to reactivate Lyme disease in a number of individuals who knew, but some who did not know, they had prior Lyme disease. The mechanisms responsible for the reactivation of the disease have not been defined, but may include both molecular mimicry and underlying infection."


Third, that many in the medical field don't recognize that there is Chronic Lyme disease or Late-Lyme disease. In this article, they are refuting those claims.

"That chronic Lyme Disease actually exists, and is likely the most common form of the disease, is supported by epidemiologic studies demonstrating that 30-50-% of treated and untreated patients go on to develop a multisymptom disorder typical of, and indistinguishable from, fibromyalgia and chronic fatigue (1, 28). As with other multisymptom disorders, chronic Lyme disease is a clinical syndrome consisting of fatigue, arthralgias and myalgias,and other nervous system dysfunction(7).

Furthermore, the results of treatment studies appear to support the hypothesis that persistent infection is responsible for the chronic symptoms. It is likely that Lyme disease will serve as a useful model for other chronic multisymptom disorders. Whether the pathogenesis of "late" Lyme Disease differs from that of the chronic form of the disease remains to be established."


This last point is one that arguably could save the U.S. economy millions of dollars in healthcare costs, as well as saving lives and relieving stress of the individuals and families involved.

Sources:
Chronic Fatigue Support.com

Wednesday, January 9, 2008

Drowning In Sleepiness

I feel like I'm drowning in the sleepiness of having to stay awake all day.

My body wants to go to a quiet place where I can be a superhero and save the world without moving a muscle except my brain.

Dreams are a relief from the reality of days when I go from 6am to 10pm without rest and without relief...pushing myself like the little train that could.

Pretending not to have Lyme Disease, to be a supermom, to be everything to everyone.

Laundry is done, the walk and driveway is shoveled, the floors are mopped and vacuumed, the dishes are clean, my kids are well, my family is happy, now I'm going to collapse!



Something I read today that I'd like to share...

Become a Better You, by Joel Olsteen
"You may not feel well today, but don't go around saying, "I don't think I'm ever going to get over this sickness." Instead, start boldly declaring, "God is restoring health unto me. I am getting better every day in every way."

No matter how I feel during the day, my push is to beat this illness and I know that I can do it!

Saturday, January 5, 2008

Plausible Multiple Sclerosis? No Way!


As I stated in the beginning to this series of articles on Lyme Disease, I experienced at least 8 years of being critically and chronically ill. Doctors could not figure out what was causing the symptoms.

Oh yes, they would guess that it maybe Arthritis, Lymphoma, Fibromyalgia, and the last diagnosis...PLAUSIBLE Multiple Sclerosis. However, I was not going to take PLAUSIBLE as the diagnosis.

Once I went through the process as stated in my December 30, 2007 post, I finally received the real diagnosis...Lyme Disease. That was after spending family vacation at Disneyland, this past October, in a wheelchair. I am never going to spend vacation at Disneyland in a wheelchair again!

Lyme Disease creates many symptoms.

Here is one site that gives some of those symptoms.
www.anapsid.org link
Abnormal sensitivity to hot or cold
Allergies (nasal, other; new, increased or worsening)
Canker sores (frequent)
Chills and/or shakes when hungry (may occur instead of feeling hungry)
Cold hands and feet
Extreme fatigue after minimal exertion
Feeling hot or cold often
Flu-like symptoms, on-going or recurrent after initial gradual or acute onset; includes mild fever (99.5-101.5 F / 37.5-38.6 C), chills
Hair loss (alopecia)
Herpes simplex or shingles rash
Increased susceptibility to infections
Low-grade fevers
Low blood pressure (below 110/70)
Low body temperature (below 97.5)
Lymph nodes painful, swollen (in neck; under arms)
Night sweats (not related to menopause or fever)
Orthostatic Intolerance (neurally mediated hypotension)
Reactive hypoglycemia and insulin resistance
Thirst, increased
Temperature irregularities; often feeling hot or cold irrespective of actual ambient temperature and body temperature; low body temperature (below 97.6 F / 36.4 C)
Thyroid inflammation (acute thyroiditis; hypothyroidism; Hashimoto's thyroiditis)



An even more impressive and comprehensive list of symptoms comes from the following site.
Canadian Lyme Disease Foundation Click Here For Link

"Many Lyme patients were firstly diagnosed with other illnesses such as Juvenile Arthritis, Rheumatoid Arthritis, Reactive Arthritis, Infectious Arthritis, Osteoarthritis, Fibromyalgia, Raynaud's Syndrome, Chronic Fatigue Syndrome, Interstitial Cystis, Gastroesophageal Reflux Disease, Fifth Disease, Multiple Sclerosis, scleroderma, lupus, early ALS, early Alzheimers Disease, crohn's disease, ménières syndrome, reynaud's syndrome, sjogren's syndrome, irritable bowel syndrome, colitis, prostatitis, psychiatric disorders (bipolar, depression, etc.), encephalitis, sleep disorders, thyroid disease and various other illnesses."

"If you are a doctor please re-examine these diagnoses, incorporating Lyme in the differential diagnoses.

"The one common thread with Lyme Disease is the number of systems affected (brain, central nervous system, autonomic nervous system, cardiovascular, digestive, respiratory, musco-skeletal, etc.) and sometimes the hourly/daily/weekly/monthly changing of symptoms."

"No one will have all symptoms but if many are present serious consideration must be given by any physician to Lyme as the possible culprit. Lyme is endemic in Canada period. The infection rate with Lyme in the tick population is exploding in North America and as the earth's temperature warms this trend is expected to continue."

Check this page link for a list of 75 symptoms that will help you to know if you should be tested for Lyme Disease.
Click Here For Page Link

I was asked about tests for Lyme Disease. The following relates the basics on the testing.

www.acponline.org link
"Blood Tests
Blood tests, also known as Lyme titers, cannot diagnose Lyme disease alone, but they are used to confirm a diagnosis. The most common blood test ordered for Lyme disease is the ELISA, with the western blot used as a follow-up test. The ELISA tests for antibodies, the body's defense system against infections; it does not test for the bacteria itself. These anti-Borrelia burgdorferi antibodies may take up to 2 to 6 weeks after infection to appear in the blood. Therefore, a blood test immediately following a tick bite will not be able to determine whether or not a person has been infected since not enough time has passed for antibodies to develop."

"Other bacterial infections and diseases may cause an ELISA to be positive when, in fact, the patient does not have Lyme disease. Therefore, the Western Blot, a more accurate test that can be used 6 to 12 weeks after infection, is recommended to confirm all positive or equivocal ELISA results. However, if symptoms and history strongly suggest Lyme disease, a doctor may begin treatment without blood test confirmation. Note that frequent testing without symptoms that suggest infection, even in endemic areas, increases the chance of a test result being positive when a person is not actually infected with Lyme disease."

I hope that this part in the series is helpful. I will continue to give further information in this series with blogs that include treatment options, statistics, links, etc.

If you suspect you may have Lyme Disease, don't wait for a doctor to offer to test you. Take it upon yourself to ask the doctor to order the tests. There is nothing wrong with taking control of your health care. It is your life. Choose to live it fully!

Sources:

www.anapsid.org - Melissa Kaplan's Chronic Neuroimmune Diseases
Information on CFS, FM, MCS, Lyme Disease, Thyroid, and more...
Melissa Kaplan, The Carousel Network, May/June 2003

www.canlyme.com - Canadian Lyme Disease Foundation

www.acponline.org - American College of Physicians